MADDY BOEHME & DR. ROBERT WEIR
Discuss Covid-19, how it affects those who are immune suppressed and the autoimmune encephalitis community.
MEET and GREET
with other support
next SYMPOSIUM in
You can help
by DONATING or purchasing from the SHOPPE!
Who We Are
A 501 3(c) not for profit organization for
an autoimmune brain disease
called Hashimoto's Encephalopathy (HE),
a type of autoimmune encephalitis (AE).
What We Do
Provide support for patients/caregivers diagnosed
with HE and those searching for a diagnosis on
Provide the latest available information and research
Tips & resources to help live with HE
Help raise awareness of this disease by writing
participating in educational medical symposiums.
Donate money towards research.
the FACES of HE
IN OUR HESA SUPPORT COMMUNITY
After a series of events including a severe reaction to carpet being installed at work, bizarre physical
and cognitive symptoms began that she had never experienced before. One day she ended up in
the ER and was then diagnosed with Graves disease. She had a procedure to kill the thyroid and had felt
great on steroids. She thought that was the end of her symptoms, but once she got off the steroids her symptoms came back with a vengeance, eventually to be diagnosed with HE.
World Encephalitis Day
2020 Conference Dallas,TX
We spread awareness through our website, social media, Facebook support groups, published books, and encephalitis conferences and symposiums. We join forces with other AE non-profits to give us more power to help people with autoimmune encephalopathy. If we cannot help someone, we try to find another group that can.
If you have this disorder or know someone with it then you must have this book!
When my daughter was first diagnosed at age three with HE we were lost. I immediately bought this book and it was my survival guide to get through the beginning phases of this diagnosis. It gave me the power as a parent to go in to her doctors appointments knowing about this disorder which afforded me the opportunity to make more knowledgeable decisions for her care. I highly recommend it for patients, families and even our neurologist wanted a copy. It is a must read if you or a family member have this diagnosis.