#SLOWtheSPREAD

HESA's

MADDY BOEHME & DR. ROBERT WEIR

Discuss Covid-19, how it affects those who are immune suppressed and the autoimmune encephalitis community.

SUPPORT GROUPS

Understanding Hashimoto's Encephalopathy

and
For Those Diagnosed With Hashimoto's Encephalopathy 

 

*VIDEO CONFERENCE

MEET and GREET

with other support

members

*STAY TUNED

For our

next SYMPOSIUM in

spring 2021.

 

You can help

by DONATING or purchasing from the SHOPPE!

Who We Are

HASHIMOTO'S ENCEPHALOPATHY
(SREAT) ALLIANCE

A 501 3(c) not for profit organization for

an autoimmune brain disease

called Hashimoto's Encephalopathy (HE),

a type of autoimmune encephalitis (AE).

What We Do

  • Provide support for patients/caregivers diagnosed
      with HE and those searching for a diagnosis on
      support groups.
  • Provide the latest available information and research
  • Tips & resources to help live with HE
  • Help raise awareness of this disease by writing
      books and
      participating in educational medical symposiums.
  • Donate money towards research.
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the FACES of HE

IN OUR HESA SUPPORT COMMUNITY

FEATURING

Lisa Foley

After a series of events including a severe reaction to carpet being installed at work, bizarre physical
and cognitive symptoms began that she had never experienced before. One day she ended up in
the ER and was then diagnosed with Graves disease. She had a procedure to kill the thyroid and had felt
great on steroids. She thought that was the end of her symptoms, but once she got off the steroids her symptoms came back with a vengeance, eventually to be diagnosed with HE. 

See her blog here

World Encephalitis Day

2020 Conference    Dallas,TX

 
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Organization’s strategy:

We spread awareness through our website, social media, Facebook support groups, published books, and encephalitis conferences and symposiums. We join forces with other AE non-profits to give us more power to help people with autoimmune encephalopathy. If we cannot help someone, we try to find another group that can.

 

A TALK WITH MADDY

MADDY TALKS WITH

DR. ROBERT WEIR

#1   #2      #3 

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AUTOIMMUNE ENCEPHALITIS:

THE BRIDGE BETWEEN NEUROLOGY AND PSYCHIATRY

2019 Symposium  NYC

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Follow Us!

see what we are up to

If you have this disorder or know someone with it then you must have this book!


When my daughter was first diagnosed at age three with HE we were lost. I immediately bought this book and it was my survival guide to get through the beginning phases of this diagnosis. It gave me the power as a parent to go in to her doctors appointments knowing about this disorder which afforded me the opportunity to make more knowledgeable decisions for her care. I highly recommend it for patients, families and even our neurologist wanted a copy. It is a must read if you or a family member have this diagnosis.

CONTACT
 

PLEASE NOTE:

This website is not a substitute for professional advice, and the content here is not intended for use in diagnosing, curing, or preventing disease. The site does not employ and is not overseen by medical professionals. Articles and studies listed here are intended solely for personal use and reference.  Although you will find a great deal of information about HE/SREAT on this website, HESA cannot provide medical advice. If you have HE/SREAT, or think you may have it, consult a qualified neurologist,

preferably one with experience addressing immune-mediated illness. 

© 2019 Hashimoto's Encephalopathy SREAT Alliance