Hashimoto's Encephalopathy/SREAT & Seronegative Autoimmune Encephalitis Alliance
Providing patient support to, public awareness of, and medical research for Hashimoto's Encephalopathy (HE)/SREAT and Seronegative Autoimmune Encephalitis (SAE).
HESA is a 501 3(c) not for profit organization for
Autoimmune Encephalitis, specifically Hashimoto's Encephalopathy/SREAT (HE/SREAT) and
Seronegative Autoimmune Encephalitis (SAE).
Seronegative means there is no known antibody identified as the cause of Autoimmune Encephalitis.
The Hashimoto’s Encephalopathy/SREAT & Seronegative Autoimmune Encephalitis Alliance was formed in 2012 by two HE patients.
It is HESA’s mission to collect, archive, and share information regarding Hashimoto’s Encephalopathy (“HE”),
also known as Steroid Responsive Encephalopathy Associated with Thyroiditis (“SREAT”),
and Seronegative Autoimmune Encephalitis ("SAE") with the public and medical professionals.
We share information relevant to HE/SREAT and SAE as well as updates on HESA's activities and our publications.
OUR UPCOMING BOOK
We at HESA are working hard and so excited to bring you our next book
Hashimoto's Encephalopathy and Seronegative Autoimmune Encephalitis: 2024
featuring patient stories, physicians and up to date information
MORE DETAILS TO COME!
RESEARCH
It is vital to have more research done for Hashimoto's encephalopathy and to make this broadly available to improve our understanding of HE and possible treatments.
We are in the process of formalizing our first grant to Dr. Ahmed Zayed Obeidat and his team and are eager to continue with him on future research projects!
Join us as we speak with AE caregivers
For full videos CLICK HERE
AE CAREGIVER SERIES
PARTICIPATE IN A SURVEY
You can get involved by helping us understand our community
by filling out oursimple survey about your AE
HESA IN-PERSON MEET UPS
An in-person face to face
meeting with other autoimmune encephalitis patients, caregivers, family members and friends.
CONFERENCES & SYMPOSIUM
WEDA World Encephalitis Day Conference 2024
Mayo Clinic, Jacksonville, Fl
NOTEABLE ARTICLES, BOOKS & RESEARCH
Understanding Hashimoto's Encephalopathy:
An Expanded and Updated Guide for Patients and Caregivers.
HESA
and Related Disorders of the Nervous System
Josep Dalmau & Francesc Graus
HESA's Maddy Boehme, gives a summation on Dr. Josep Dalmau's new book, "Autoimmune Encephalitis; and Related Disorders of the Nervous System.