FINDING
an AE SPECIALIST
Finding a physician who specializes in AE may be one of the toughest hurdles (next to your insurance company) that you may encounter. A really knowledgeable and personable doctor who will listen is like finding a precious gem!
PHYSICIANS
One of the most difficult trials is finding a good physician who can diagnose
and treat your type of autoimmune encephalitis. Hashimoto's encephalopathy is a
sero negative autoimmune encephalitis. Along with other sero negative AE's it may
be extra ordinarily difficult to find a physician. The following is a list of patient recommended physicians from our support group.
*Please know HESA can only suggest these physicians but cannot guarantee any outcomes.
*We strongly suggest putting in a call to their office before making an appointment to ensure they have experience with autoimmune encephalitis specefically Hashimoto's encephalitis.
*Ask if they need any records to be emailed or faxed before your visit.
Physicians by State
Alabama Alaska Arizona Arkansas
California Colorado Connecticut
Delaware
Hawaii
Kansas Kentucky
Louisiana
Maine Maryland Massachusetts Michigan Minnesota Mississippi Missouri Montana
Nebraska Nevada New Hampshire New Jersey New Mexico New York North Carolina North Dakota
Ohio Oklahoma Oregon
Rhode Island
South Carolina South Dakota
Tennessee Texas
Vermont
Virginia
Washington Washington DC West Virginia Wisconsin Wyoming
What Kind of Doctors Can Diagnose Autoimmune Encephalitis?
Since it is an autoimmune condition of the brain, most doctors knowledgeable
in diagnosing and autoimmune encephalitis are neurologists.
(Our hope is that one day every physician around the globe will be able to recognize AE/E)
Difficulty getting to your child's physician?
Miracle Flights provides free medical flights to specialized care and second opinions for children (More Info)
However, other doctors are also very knowledgeable in diagnosing such as:
-
Neurologists
-
Rheumatologists
-
Psychiatrists, psychologists
-
Neuropsychiatrists
-
Immunologists
-
Family physicians and pediatricians
-
Emergency medicine
-
Infectious disease (in cases of viral or bacterial encephalitis which can lead to autoimmune encephalitis)
There are some hospitals that work "across the aisle" or "interdepartmental collaboration" where specialists in one area will work with specialists in other areas to diagnose or treat patients.
There are also doctors with "dual training" for example a doctor certified in both neurology and psychiatry, (there are other dual trained specialists as well). This can give the physician and edge in identifying whether a patient has a neurological or psyciatric condition.
Note: Rarely do endocrinologists diagnose AE, however there are some who can. It is widely assumed by patients that since the diagnosis is called "Hashimoto's Encephalopathy" therefore it can be identified by an endocrinologist who diagnose Hashimoto's thyroiditis.
ALABAMA
Neurology
University of Alabama
1201 11th Ave South, Birmingham, AL, 35205
617-667-0449
Pediatric Neurology
1600 7th Ave. S.,
CHB Suite 314
Birmingham, AL 35233
(205) 996-7850
ARIZONA
Pediatric Neurology
Phoenix Childrens Hospital Medical Group
1919 E Thomas Rd
Phoenix, AZ 85016-7710
(602) 933-0970
Neurology
350 West Thomas Road
Phoenix, Arizona 85013
844-436-6235
Pediatric/Adult Psychiatrist
Metropolitan Neuro Behavioral Institute
70 N. McClintock Dr., Suite 4
Chandler, AZ 85226
(480) 464-4431
Neuropsychiatrist
Barrow Neurological Institute
Department of Neuropsychiatry
240 West Thomas Road, Suite 301
Phoenix, Arizona 85013
(866) 791-8527
Fax: (602) 406-6261
Psychiatry
Barrow Neurological Institute
Department of Neuropsychiatry
240 West Thomas Road, Suite 301
Phoenix, Arizona 85013
(866) 791-8527
Fax: (602) 406-6261
Neurology
Barrows Neurological Institute
Barrow Multiple Sclerosis Program
240 West Thomas Road, Suite 400
Phoenix, Arizona 85013
(866) 791-8527.
Fax: (602) 406-6261
CALIFORNIA
Pediatric Rheumatology
PANS
Stanford
730 Welch Rd
2nd Fl
Palo Alto, CA 94304
(650) 497-9063
(650) 736-4344 (fax)
Kaiser
Sacramento Medical Center
3rd Floor
2025 Morse Avenue
Sacramento, CA 95825
Department
Neurology
(916)973-5175
Scripps Green Hospital
10710 N Torrey Pines Rd
La Jolla, CA 92037
(858) 554-8202
Pediatric Immunology
Stanford
PANS Clinic
321 Middlefield Road
Menlo Park, CA 94025
Phone: (650) 736-3555
Fax: (650) 736-1525
Neurology
UCSF
Multiple Sclerosis Center
1500 Owens St., Suite 320
San Francisco, CA 94158
(415) 353-2069
Neurology
UCSF
Multiple Sclerosis Center
1500 Owens St., Suite 320
San Francisco, CA 94158
415-502-5683
(415) 353-2069
UCSF
Multiple Sclerosis Center
1500 Owens St., Suite 320
San Francisco, CA 94158
(415) 353-2069
622 W Duarte Rd Ste 304
Arcadia, CA 91007
(626) 737 - 6231
Pediatric Neurology
Loma Linda Pediatric Subspecialty Clinics
J-West, San Bernardino, CA 92408
Loma Linda University Children's Hospital
Pediatric Neurology
Standford Children's Health
730 Welch Rd
Ste 206
Palo Alto, CA 94304
(650) 723-0993
COLORODO
University of Colorado, Neurology
Neurology Clinic
Anschutz Outpatient Pavilion
University of Colorado Hospital
1635 Aurora Court, Suite 5200
Aurora, CO 80045
For appointment information:
Telephone: (720) 848-2080
Fax: (720) 848-2106
Neurology Clinic
Anschutz Outpatient Pavilion
University of Colorado Hospital
1635 Aurora Court, Suite 5200
Aurora, CO 80045
For appointment information:
Telephone: (720) 848-2080
Fax: (720) 848-0640
Associated Neurologists
Della Cava Family Medical Pavilion
4801 Riverbend Road, Suite 200
Boulder, CO 80301
Phone (303) 415-8800
Fax (303) 415-8801
Neurosciences Center - Anschutz
1635 Aurora Ct
4th Floor
Aurora, CO 80045
720-848-2080
UCH - Anschutz Outpatient Pavilion
1635 Aurora Ct
Aurora, CO 80045
720-848-0000
Neurology Physicians Assistant
Neuroimmunology Clinic for Children
1635 Aurora Court, Suite 5200
Aurora, CO 80045
Appt: (720) 848-2080
Non urgent questions: (720) 777-2212
Pediatric Neuroimmunology
Neuroimmunology Clinic for Children
1635 Aurora Court, Suite 5200
Aurora, CO 80045
Appt: (720) 848-2080
Non urgent questions: (720) 777-2212
Pediatric Neuropsychologist
Neuroimmunology Clinic for Children
1635 Aurora Court, Suite 5200
Aurora, CO 80045
Appt: (720) 848-2080
Non urgent questions: (720) 777-2212
Pediatric Psychologist
Neuroimmunology Clinic for Children
1635 Aurora Court, Suite 5200
Aurora, CO 80045
Appt: (720) 848-2080
Non urgent questions: (720) 777-2212
CONNECTICUT
Neurology
Yale School of Medicine
6 Devine Street, Ste Suite 2B
North Haven, CT, 06473
203.287.6100
203.287.6101
Neuroimmunology
Yale MS Center
6 Devine Street, Ste Suite 2B
North Haven, CT, 06473
203.287.6100
203.287.6101
FLORIDA
Pediatric Neurology
615 E Princeton St
Ste 540
Advent Medical Group Epilepsy
Orlando, Fl 32803
(407)303-8127
(407)303-8197
615 e princeton st
Suite 540
Orlando, Florida 32803
Dr. Melissa Elder
Pediatric Rheumatology
UF Health
(352) 294-5252
Center for Orphaned Autoimmune Disorders (COAD)
352-273-6739
1395 Center Drive
Gainesville, FL 32610
UF Health Pediatric Specialties – Oakhurst
352.265.PEDS (7337)
1329 SE 25th Loop
Unit 101
Ocala, FL 34471
UF Health Pediatric Specialties – Shands Hospital
352-265-8250
1600 SW Archer Road
Fourth Floor
Gainesville, FL 32610
UF Health Shands Children’s Hospital
352-733-0111
1600 SW Archer Road
Gainesville, FL 32608
Advent HealthMedical Group
501 E King Street
Orlando, FL 32803
407-303-8127
Florida Hospital Medical Group
615 E Princeton St Ste 540
Orlando, FL 32803
(407) 303-8127
The Villages Regional Hospital
1451 El Camino Real
Lady Lake, FL 32159
(352) 751-8000
Neurology
Advent Health
Florida Hospital
Ste 540
615 E Princeton St, Orlando, FL
(407) 303-8127
402 West Dr Martin Luther King Blvd
Tampa, Fl 33603
(813)223-4444
Neurology
USF Health
12901 Bruce B. Downs Blvd
MDC55
Tampa FL 33612
(813) 974-3541
GEORGIA
Neurology
Emory Brain Health Center
12 Executive Park Drive Northeast
Atlanta, GA 30329
Neurology
1558 Watson Blvd
Warner Robins, Georgia 31093-3432
Map and Directions
Phone: (478) 922-6140
Fax: (478) 922-6141
WellStar Medical Group
Neuroscience
61 Whitcher Street NE
Suite 3110
Marietta, GA 30060
Phone: (770) 422-2326
Fax: (770) 422-7797
ILLINOIS
Neurology
Northwestern Medicine
Regenstein Center for Neurological Care
259 E Erie St Ste 1900
Lavin Family Pavilion
Chicago IL 60611
Phone: 312.695.7950Fax: 312.695.5747
Neuroimmunology
Northwestern Medicine
Regenstein Center for Neurological Care
259 E Erie St Ste 1900
Lavin Family Pavilion
Chicago IL 60611
Phone: 312.695.7950Fax: 312.695.5747
Neurology/Immunology
Duchossois Center for Advanced Medicine (DCAM) - Hyde Park
5758 S. Maryland Ave.
Chicago, IL 60637
773-702-6222
INDIANA
Indiana University Health Methodist 362 W 15th St, Suite 3200
Indianapolis, IN
317.948.5450
School of medicine#(317) 962-5933
Indiana University Health Methodist
IU Health Physicians Pulmonary & Critical Care Medicine
317.962.5820
1801 N Senate Blvd, Suite 230
Indianapolis, IN 46202
Immunology
University of Iowa Hospitals and Clinics
200 Hawkins Drive
Iowa City, IA 52245
(319) 356-2892
KENTUCKY
Child Neurology
Neuroimmunology and autoimmune encephalitis
UofL Hospital - Multiple Sclerosis Clinic at Ambulatory Care Building
550 S. Jackson St.
3rd Floor
Louisville, KY 40202
502-561-7400
Child Neurology Novak Center for Children's Health
411 E. Chestnut Street
6th Level, Check-in
Louisville, KY 40202
502-588-3650
MARYLAND
Neurology
Encephalitis Center
601 North Caroline Street
Suite 5064, Baltimore, MD 21287
410-955-8174
Fax: 410-955-0672
Neurology
Encephalitis Center
601 North Caroline Street, Suite 5064
Baltimore, MD 21287
410-955-8174
Fax: 410-955-0672
Neurology
Encephalitis Center
601 North Caroline Street, Suite 5064
Baltimore, MD 21287
410-955-8174
Fax: 410-955-0672
Neurology
Encephalitis Center
601 North Caroline Street, Suite 5064
Baltimore, MD 21287
410-955-8174
Fax: 410-955-0672
Neurology
Encephalitis Center
601 North Caroline Street, Suite 5064
Baltimore, MD 21287
410-955-8174
Fax: 410-955-0672
Pediatric Neurology
Childrens National
Montgomery County Outpatient Center
9850 Key West Avenue
Rockville, Maryland 20850
301-765-5400
800-787-0243
Neurology
University of Maryland
UM Neurology Care Center
16 South Eutaw Street
Suite 300
Baltimore, MD 21201
410-328-4323
Fax:410-328-1149
MASSACHUSSETTS
Massachusetts’s General
55 Fruit St
Boston, MA 0211
James.hillis.harvard.edu
75 Francis St
Boston, MA, 02115
(617) 732-5500
Massachusetts General
Neurology Associates
15 Parkman Street
Boston, MA 02114-3117
617-726-8639
Massachusetts General
Neuroimmunology/Neuro-opthomology
Department of Neurology
Wang Ambulatory Care Center
8th Floor, Suite 835
15 Parkman Street
Boston, MA 02114
617-726-7565
Neurology Associates
15 Parkman Street
Wang 7
Boston, MA 02114-3117
617-726-7565
617-724-2209
Fax: 617-726-2353
Pediatric NeuroImmunology
Boston Children's Hospital
Department of Neurology300 Longwood Avenue
Fegan, 11th Floor
Boston, Massachusetts 02115
617-355-6388
857-218-4794
617-730-0284
Pediatric NeuroImmunology
Boston Children's Hospital
Department of Neurology300 Longwood Avenue
Fegan, 11th Floor
Boston, Massachusetts 02115
617-355-6388
857-218-4794
617-730-0285
MINNESOTA
Adult and ped neurology
Midwest Immunology Clinic
15700 37th Ave. N.
Ste 110
Plymouth, MN 55446
(763) 577-0008
Fax (763) 577-0192
Noran Neurological Clinic
Neurologist/Psychiatrist
Primary Mailing Address:
Midtown Medical Building
2828 Chicago Avenue, Suite 200
Minneapolis, MN 55407
Scheduling Line: 612.879.1500
Scheduling/Referrals Fax: 612.879.9116
Scheduling lines open: Mon - Fri (8am - 3:30pm)
Pediatric neurologist
200 University Ave. E.
Saint Paul, MN, 55101
(651) 290-8707
Minneapolis, MN
Center for Multiple Sclerosis and Autoimmune Neurology
Mayo Clinic
200 First St. SW
Rochester, MN 55905
Phone: 507 -538-3761
507-538-5418
Fax: 507-293-9153
Email: sagen.jessica@mayo.edu
Center for Multiple Sclerosis and Autoimmune Neurology
Mayo Clinic
200 First St. SW
Rochester, MN 55905
Phone: 507 -538-3761
507-538-5418
Fax: 507-293-9153
Email: sagen.jessica@mayo.edu
Center for Multiple Sclerosis and Autoimmune Neurology
Mayo Clinic
200 First St. SW
Rochester, MN 55905
Phone: 507 -538-3761
507-538-5418
Fax: 507-293-9153
Email: sagen.jessica@mayo.edu
NEW JERSEY
Immunology
254 Easton Avenue
New Brunswick, NJ 08901
(732) 339-7780
Pediatric psychiatry with experience in AE
Total Spectrum Health
171 Woodport Road
Sparta, NJ 07871
973-383-1533
973-726-3001
NEW YORK
Pediatric Neurology
CUMC/Harkness Pavilion
180 Fort Washington Avenue
Suite 5
New York, NY 10032
Phone: (212) 342-6867
Fax: (212) 342-6865
Neurology/Psychiatry
Mt. Sinai Hospital
212-241-7076
Icahn School of Medicine at Mount Sinai
5 East 98th Street
First Floor, Suite 1138
New York, New York, 10025
Pediatric Neurology/Psychiatry
NYU Langone Comprehensive Epilepsy Center
223 East 34th Street
New York, NY 10016
Neurology/Psychiatry
NewYork-Presbyterian Hospital
Assistant Professor of Neuropsychiatry in Clinical Neurology
Weill Cornell Medical College, Cornell University
Alzheimer’s Disease and Memory Disorders Program
428 East 72 St
Suite 500
NYC,10021
(212) 746-2441
Neuro Oncologist
Memorial Hospital; Lillian Rojtman Berkman Chair in Honor of Jerome B. Posner
Memorial Sloan Kettering
(212) 639-7123
1275 York Ave, New York, NY
(646) 227-3813
Neurology
Autoimmune encephalitis and other
151 East 62nd ST.
STE 1A
New York, NY 10065
Tel: 212-288-8832
Fax: 212-257-7003
Neurology
Northwell Health Physician Partners Neurology at East 77th Street
176 East 77th StreetNew York, NY 10075
Phone: (212) 434-6400
Fax: (212) 434-2055
Neurology
NHPP Neuroscience Institute at Great Neck
611 Northern Boulevard, Suite 150Great Neck, NY 11021
(516) 325-7000
(516) 325-7001
Neurology
NHPP Neuroscience Institute at Great Neck
611 Northern Boulevard, Suite 150Great Neck, NY 11021
(516) 325-7000
(516) 325-7001
Psychiatry
Precision Medicine Initiative
JLG, 3227 Broadway
L4-003
NYC 10027
212-853-1113
212-543-5553
Psychiatry, Weill Cornell
(Familiar with AE)
525 East 68th Street
New York, NY 10065
212-746-3630
Neurology
Weill Cornell
520 East 70th Street
Starr Pavilion, 607
New York, NY 10021
(212) 746-3113
(646) 962-0386
Health Quest Medical Practice
21 Reade Pl
Ste 1100
Poughkeepsie, NY 12601
845) 214-1922
Neurology
Strong Memorial Hospital
Rochester, NY
601 Elmwood Ave Floor 1
Strong AmbulatoryCare Facility
(585) 275-7854
Pediatric Neurology
University of Rochester Medical Center
200 East River Rd
Rochester, NY 14623
(585) 275-2808
Fax: (585) 275-3683
Pediatric Neurology
University of Rochester Medical Center
200 East River Rd
Rochester, NY 14623
(585) 275-2808
Fax: (585) 275-3683
NORTH CAROLINA
Pediatric Rheumatology
Duke Children's Health Center Rheumatology Clinic
2301 Erwin Rd
Durham, NC 27710-4699
Office: 919-684-6575
Duke Children's Specialty Services of Brier Creek - Cerny Street
10207 Cerny St
Raleigh, NC 27617-4880
Office: 919-576-8333
Duke Children's Specialty Services of Brier Creek – Alm Street
10211 Alm St
Raleigh, NC 27617-8221
Office: 919-307-0170
Child and Adolescent Psychiatrist, Pediatrician, Psychiatrist
Duke Children's Health Center Psychiatry Clinic
2301 Erwin Rd
Durham, NC 27710-4699
Office: 919-668-4148
40 Duke Medicine Cir
Durham, NC 27710-4000
Office: 919-684-0100
Pediatric Rheumatology
Duke Children's Health Center Rheumatology Clinic
2301 Erwin Rd
Durham, NC 27710-4699
Office: 919-684-6575
OHIO
Neurology
Trihealth
8040 Princeton-Glendale Road
West Chester, Ohio 45069
513.246.7000
Fax: 513.246.5479
Neurology
9500 Euclid Avenue
Cleveland, OH 44195
216.444.8600
216.444.8602
Fax: 216.445.6259
PENNSYLVANIA
Pediatric Neurology
Children's Hospital of Philadephlia (CHOP)
3401 Civic Center Blvd.
Philadelphia, PA 19104-4399
1-800-879-2467
Buerger Center For Advanced Pediatric Care
215-590-1000
Pediatric Neurology
University of Pittsburgh Medical Center (UPMC)
UPMC Children's Hospital of Pittsburgh, Pediatric Neurology
4401 Penn Avenue, Floor 2
Pittsburgh, PA 15224
412-692-5520
TEXAS
Neurology
Houston Methodist
Scurlock Tower
6560 Fannin St.
Ste 802
Houston, TX 77030
(713)441-1150
Neurology/Psychiatry
UT Southwestern
5323 Harry Hines Blvd Dallas, TX 75390
Phone
(214) 648-7312
Pediatric Neurologist
Childrens Health Specialty Center Dallas
2350 North Stemmons Freeway
Dallas, TX 75207
(844) 4 CHILDRENS
Neurology
UT Southwestern
Neurology Clinic-Neuromuscular Disorders
4th Fl
Ste 108
214-645-8800
James W. Aston Ambulatory Care Center
5303 Harry Hines Blvd.
4th Floor, Suite 108
Dallas, Texas 75390
Pediatric Rheumatology
Texas Children’s Hospital
6701 Fannin Street
11th Floor
Houston, TX 77030
832-824-1319
832-825-1260
Autoimmune Neurology
The Multiple Sclerosis and Neuroimmunology Clinic
James W. Aston Ambulatory Care Center
5303 Harry Hines Blvd., 8th Floor
Dallas, Texas 75390
214-645-8300
214-645-8800
The Multiple Sclerosis and Neuroimmunology Clinic
James W. Aston Ambulatory Care Center
5303 Harry Hines Blvd., 8th Floor
Dallas, Texas 75390 214-645-8300 or 214-645-8800
Dr. Fernando Sanchez-Villasenor
Neurology
1710 E. Saunders, Suite B370
Laredo , TX
(956) 722-1864
Laredo Medical Center
UTAH
Brain and Imaging Neurosciences Center
729 Arapeen Dr
801-585-7575
Salt Lake City, UT 84108
WASHINGTON
Neurology
Swedish Hospital
Swedish Neurology- Cherry Hill
550 17th Avenue
Suite 400
Seattle, WA 98122
WASHINGTON DC
Pediatric Neurology
Children’s National
Main HospitalWashington, District of Columbia 20010
1-888-884-BEAR (2327)
Montgomery County Outpatient Center
Rockville, Maryland 20850
301-765-5400
800-787-0243
Pediatric Neurology
Latimer Neurology Center
2401 Pennsylvania Avenue
NW Suite 400
Washington, DC 20037
Phone: (202) 625-4898
WISCONSIN
Aurora Health Care
2845 Greenbrier Rd
Ste 140
Green Bay, WI 54311
Phone: 920-288-8100
Fax: 920-288-8153
Other Places To Look
Teaching Hospitals (Just to name a few)
Mayo Clinic (US)
Weill Cornell Medical Center (US)
Columbia Presbyterian Medical Center (US)
Northwestern University Medical Center (US)
Cleveland Clinic (US)
University of Pennsylvania Center for Autoimmune Neurology (US)
Johns Hopkins Medical Center (US)
Massachusetts General Hospital (US)
Duke University & Autoimmune Brain Disease Clinic (US)
UCSF Multiple Sclerosis and Neuroinflammation Center (US)
Neurosciences Department of the Froedtert Hospital/Medical College of Wisconsin (US)
UT Southwestern and Children’s Health Dallas (US)
Womans and Brigham Hospital (US)
Boston Children's Hospital (US)
Neuro-Immunology Clinic at South Health Campus (Alberta, Canada)
Oxford University (UK)
Odense University Hospital (Denmark)
University of Regensburg Hospital/Department of Neurology (Germany)
Westmead Hospital (Australia)
Barrow (US)
Other recommended websites with lists of physicians lists:
AE Alliance Clinicians's Network