HESA News
In Person Meet Up
February 20-22 (Friday-Sunday) 2026
Denver, Colorado
WEDA Conference
More details to come!
Register with us & follow us on social media to stay up to date with events.
Newsletters
September 2025
June 2025
March 2025
Fundraisers
Kendra Scott Gives Back Event
June 2025
HEALING BRAIN SWEEPSTAKES WINNERS
IPHONE WATCH- MARLEY HUNT​​
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KENDRA SCOTT PENDANT AND COACH WRISTLET - JACKIE ROBINOWITZ​​
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PICKLEBALL SET - MICHAEL MOORE
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GIFT CERTIFICATE-JENNIFER MURPHY
Thank you to everyone who supported us!!!!!
Past Events
2025
Come Together and Connect
HESA and Encephalitis 411 are building a stronger community for those affected by encephalopathy and encephalitis​.
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It doesn’t matter whether you are affected by encephalopathy or encephalitis, caused by an autoimmune response, viral infection, bacterial infection, or an unknown cause; we are in this together.
Milwaukee, Wisconsin, Aug 2025
2024
February 2024
The World Encephalitis Day Alliance presents – WEDA 2025 Conference & Conversations
WEDA 2025 organized by World Encephalitis Day Alliance was a fantastic 3 day event of inspiring talks, networking, and thought-provoking discussions. The WEDA 2024 was a must-attend for anyone interested in the latest research and developments in encephalitis. Attendees connected with like-minded community members, learned from experts, and were part of the conversation that shapes the future. It was held at Mayo Clinic in Jacksonville, Florida.
October 2024
An all day event that focused on pediatric and adult
autoimmune encephalitis (AE) with physicians, caregivers, and the survivors impacted.
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Speakers:
Hesham Abboud, MD, PhD
Alise K Carison, MD, MS
Eoin Flanagan, MD, B, CH
Ahmed Zayed Obeidat, MD, PhD
Ian Rossman, MD, PhD
Rajeet Shrestha, MD, Jill Winegardner, PhD​
2021
WORLD ENCEPHALITIS DAY ALLIANCE
CONFERENCE 2021
A virtual event for patients, caregivers and physicians to support our community, educate and promote awareness of various forms of encephalitis.
An virtual symposium for medical professionals who speak about the importance of crossing the aisle and using a necessary multidisciplinary approach among medical professionals.
ASK ME ABOUT HE CAMPAIGN 2021
with HESA and AE ALLIANCE​
HESA and AE Alliance raised awareness of autoimmune encephalitis together with our communities by posting pics with the most common ways they are affected by AE.
#AskMeAboutHE
2020
A first of its kind event for patients and caregivers with multiple encephalitis organizations working together
to bring support and education to the
encephalitis community.
Celebrating Faces of HE
SUSAN FOLEY
RECEIVES
RARE DISEASE LEADER AWARD
Global Genes connects, empowers and inspires the rare disease community. The organization’s strategy: "We spread awareness through our website, social media, Facebook support groups, published books, and encephalitis conferences and symposiums. We join forces with other AE non-profits to give us more power to help people with autoimmune encephalopathy. If we cannot help someone, we try to find another group that can."
MADDY BOEHME'S JOURNEY WITH AUTOIMMUNE
ENCEPHALITIS
with Quest Diagnostics
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