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2016 b00k
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“This book describing physician experience with autoimmune encephalitis patients and the stories of patients experiences demonstrates the importance of developing disease classification and diagnostic criteria based on robust data so that each patient recieves the correct diagnosis and treatment."

—  Dr. Josep Dalmau, Research Professor at the Catalan Institute for Research and Advanced Studies (ICREA) in IDIBAPS/ Hospital Clinic, University of Barcelona and University of Pennsylvania Center for Autoimmune Neurology


Understanding Hashimoto's Encephalopathy 2016 Edition: An Expanded and Updated Guide for Patients, Families, and Caregivers is the second book HESA has written about this rare autoimmune disease. Hashimoto's Encephalopathy ("HE"), often referred to as Steroid Responsive Encephalopathy Associated with Thyroiditis ("SREAT"), strikes people of all ages, in all walks of life, and takes a devastating toll on patients and their loved ones. This poorly understood disease continues to puzzle physicians and researchers around the globe. As a result, patients with HE often remain undiagnosed for months or even years, if they are lucky enough to be diagnosed at all.

In this book, readers will learn the symptoms, diagnostic criteria and challenges, and treatment options for HE, as well as the scientific theories regarding the causes and diagnostic markers of the disease. Throughout the book the reader will find citations and Internet links to scientific articles about HE/SREAT published between 2010 and 2016. New in this expanded edition are interviews with some of the most highly respected clinicians in the world in which they share their knowledge and experience with both researching HE and treating patients with the disease. Additionally, this edition includes tips for living with HE, and an extensive glossary of related terms, acronyms, and medications.

At the heart of the book, as was in the first book, are first-person narratives written by HE patients and caregivers around the world, which provide the reader with a glimpse into daily life with the debilitating effects of HE. Patients describe their symptoms, their struggle to find a diagnosis, and their treatment experiences. A separate section is devoted to the stories of pediatric HE/SREAT patients, as told by their parents.

Understanding Hashimoto's Encephalopathy offers a comprehensive picture of HE/SREAT that is helpful for physicians, while written in language accessible to the layperson.

DISCLAIMER: As with all books, Understanding Hashimoto's Encephalopathy is not intended to be and should not be considered to constitute medical advice.

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