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Hashimoto's Encephalopathy/SREAT & Seronegative Autoimmune Encephalitis Alliance

Providing patient support to, public awareness of, and medical research for Hashimoto's Encephalopathy (HE)/SREAT and Seronegative Autoimmune Encephalitis (SAE).

HESA is a 501 3(c) not for profit organization for

Autoimmune Encephalitis, specifically Hashimoto's Encephalopathy/SREAT (HE/SREAT) and

Seronegative Autoimmune Encephalitis (SAE).

Seronegative means there is no known antibody identified as the cause of Autoimmune Encephalitis.

The Hashimoto’s Encephalopathy/SREAT & Seronegative Autoimmune Encephalitis Alliance was formed in 2012 by two HE patients.
It is HESA’s mission to collect, archive, and share information regarding Hashimoto’s Encephalopathy (“HE”),

also known as Steroid Responsive Encephalopathy Associated with Thyroiditis (“SREAT”),
and Seronegative Autoimmune Encephalitis ("SAE") with the public and medical professionals.
We share information relevant to HE/SREAT and SAE as well as updates on HESA's activities and our publications.

Videos

Hashimoto's Encephalopathy/SREAT & Seronegative Autoimmune Encephalitis

 Available on Amazon, Barnes and Noble, and here in our bookstore.

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"Dismissing a patient can be one of the gravest errors a neurologist can make."

-Dr. Ahmed Zayed Obeidat

Neuroimmunology

Froedtert Hospital, Milwaukee, WI

UPCOMING RESEARCH

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It is vital to have more research done for Hashimoto's encephalopathy and to make this broadly available to improve our understanding of HE and possible treatments.

We are in the process of formalizing our first grant to Dr. Ahmed Zayed Obeidat and his team and are eager to continue with him on future research projects!

JOURNEY TO DIAGNOSIS SERIES

Join us as we discuss journeys to diagnosis. For full videos CLICK HERE

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Join us as we speak with AE caregivers. For full videos CLICK HERE

AE CAREGIVER SERIES

PARTICIPATE IN A SURVEY

You can get involved by helping us understand our community

by filling out oursimple survey about your AE

HERE

HESA IN-PERSON MEET UPS

An in-person face to face

meeting with other autoimmune encephalitis patients, caregivers, family members and friends.

NOTEABLE ARTICLES, BOOKS & RESEARCH

Medical Gaslighting: A Growing Concern in Modern Healthcare

Feature Article December - January 2025

Hashimoto's Encephalopathy/SREAT & Seronegative Autoimmune Encephalitis 

HESA 2024

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The Acute Neurology Survival Guide

With section on  Autoimmune Encephalitis

Catherine S.W. Albin, Sahar F. Zafar

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Autism or Encephalitis?

"My Son’s Misdiagnosis &

Our Family’s Season in Hell"

S. Stiles, Quillette, 1/21/22

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Understanding Hashimoto's Encephalopathy:

An Expanded and Updated Guide for

Patients and Caregivers. 2016 Edition.

HESA

CONTACT

Contact

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PLEASE NOTE:

This website is not a substitute for independent professional advice. Nothing contained on this website is intended to be used as medical advice. No content is intended to be used to diagnose, treat, cure or prevent any disease, nor should it be used for therapeutic purposes or as a substitute for your own health professional’s advice.

Content published to this website not evaluated by a medical professional unless otherwise noted. Articles and studies are linked to for personal reference, not to provide advice, diagnosis, or treatment of any medical condition or suspected medical condition.

Although you will find a great deal of information about HE/SREAT and Seronegative AE here, it is intended to provide information only. HESA cannot provide medical advice. If you have HE/SREAT or Seronegative Autoimmune Encephalitis, or think you may have it, consult a qualified neurologist, preferably one with experience addressing immune-mediated illness. HESA shall not be held responsible for the contents of links to studies, their errors, omissions, or any malicious software they may contain.

All information is provided for your personal use and research without warranty.

© 2022 Hashimoto's Encephalopathy SREAT Alliance
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