top of page
mosaic people.PNG
HESA round logo 2021.png

Hashimoto's Encephalopathy/SREAT & Seronegative Autoimmune Encephalitis Alliance

Providing patient support to, public awareness of, and medical research for Hashimoto's Encephalopathy (HE)/SREAT and Seronegative Autoimmune Encephalitis (SAE).

PayPal ButtonPayPal Button

HESA is a 501 3(c) not for profit organization for

Autoimmune Encephalitis, specifically Hashimoto's Encephalopathy/SREAT (HE/SREAT) and

Seronegative Autoimmune Encephalitis (SAE).

Seronegative means there is no known antibody identified as the cause of Autoimmune Encephalitis.

The Hashimoto’s Encephalopathy/SREAT & Seronegative Autoimmune Encephalitis Alliance was formed in 2012 by two HE patients.
It is HESA’s mission to collect, archive, and share information regarding Hashimoto’s Encephalopathy (“HE”),

also known as Steroid Responsive Encephalopathy Associated with Thyroiditis (“SREAT”),
and Seronegative Autoimmune Encephalitis ("SAE") with the public and medical professionals.
We share information relevant to HE/SREAT and SAE as well as updates on HESA's activities and our publications.

COMING SOON

OUR NEW BOOK!

Hashimoto's Encephalopathy/SREAT and Seronegative Autoimmune Encephalitis

It will be available on Amazon and here in our bookstore.

IMG_2440.PNG

"Dismissing a patient can be one of the gravest errors a neurologist can make."

-Dr. Ahmed Zayed Obeidat

Neuroimmunology

Froedtert Hospital, Milwaukee, WI

UPCOMING RESEARCH

Screenshot 2024-02-21 at 10.00.12 AM.png

It is vital to have more research done for Hashimoto's encephalopathy and to make this broadly available to improve our understanding of HE and possible treatments.

We are in the process of formalizing our first grant to Dr. Ahmed Zayed Obeidat and his team and are eager to continue with him on future research projects!

PayPal ButtonPayPal Button

JOURNEY TO DIAGNOSIS SERIES

Join us as we discuss journeys to diagnosis. For full videos CLICK HERE

IMG_1574.PNG

Join us as we speak with AE caregivers. For full videos CLICK HERE

AE CAREGIVER SERIES

PARTICIPATE IN A SURVEY

You can get involved by helping us understand our community

by filling out oursimple survey about your AE

HERE

HESA IN-PERSON MEET UPS

An in-person face to face

meeting with other autoimmune encephalitis patients, caregivers, family members and friends.

NOTEABLE ARTICLES, BOOKS & RESEARCH

hesa book.jpg

Understanding Hashimoto's Encephalopathy:

An Expanded and Updated Guide for

Patients and Caregivers. 2016 Edition.

HESA

IMG_8968.PNG

The Acute Neurology Survival Guide

With section on  Autoimmune Encephalitis

Catherine S.W. Albin, Sahar F. Zafar

quilette article.png

Autism or Encephalitis?

"My Son’s Misdiagnosis &

Our Family’s Season in Hell"

S. Stiles, Quillette, 1/21/22

CONTACT

Contact

Thanks for submitting!

Thanks for submitting!

bottom of page