Hashimoto's Encephalopathy/SREAT & Seronegative Autoimmune Encephalitis Alliance
Providing patient support to, public awareness of, and medical research for Hashimoto's Encephalopathy (HE)/SREAT and Seronegative Autoimmune Encephalitis (SAE).
HESA is a 501 3(c) not for profit organization for
Autoimmune Encephalitis, specifically Hashimoto's Encephalopathy/SREAT (HE/SREAT) and
Seronegative Autoimmune Encephalitis (SAE).
Seronegative means there is no known antibody identified as the cause of Autoimmune Encephalitis.
The Hashimoto’s Encephalopathy/SREAT & Seronegative Autoimmune Encephalitis Alliance was formed in 2012 by two HE patients.
It is HESA’s mission to collect, archive, and share information regarding Hashimoto’s Encephalopathy (“HE”),
also known as Steroid Responsive Encephalopathy Associated with Thyroiditis (“SREAT”),
and Seronegative Autoimmune Encephalitis ("SAE") with the public and medical professionals.
We share information relevant to HE/SREAT and SAE as well as updates on HESA's activities and our publications.
COMING SOON
OUR NEW BOOK!
Hashimoto's Encephalopathy/SREAT and Seronegative Autoimmune Encephalitis
It will be available on Amazon and here in our bookstore.
"Dismissing a patient can be one of the gravest errors a neurologist can make."
-Dr. Ahmed Zayed Obeidat
Neuroimmunology
Froedtert Hospital, Milwaukee, WI
UNIVERSITY HOSPITAL ASSEMBLY ON AE
10/26/2024
"Strides in Autoimmune Encephalitis": An Autoimmune Encephalitis Assembly
University Hospital, Wolstein Research Building, 1st Floor, Main Auditorium
2103 Cornell Rd, Cleveland, OH 44106
An all day event focusing on pediatric and adult
autoimmune encephalitis (AE) with physicians, caregivers, and the survivors impacted.
Speakers:
Hesham Abboud, MD, PhD
Alise K Carison, MD, MS
Eoin Flanagan, MD, B, CH
Ahmed Zayed Obeidat, MD, PhD
Ian Rossman, MD, PhD
Rajeet Shrestha, MD, Jill Winegardner, PhD
Education in AE is vital to diagnose patients more quickly, limiting the possible extent of damage to cognitive and physical impairment. The assembly aims to provide an opportunity for multidisciplinary learning and collaboration as well as an opportunity to build connections for participants, including physicians, researchers, patients, caregivers, and other impacted guests.
UPCOMING RESEARCH
It is vital to have more research done for Hashimoto's encephalopathy and to make this broadly available to improve our understanding of HE and possible treatments.
We are in the process of formalizing our first grant to Dr. Ahmed Zayed Obeidat and his team and are eager to continue with him on future research projects!
Join us as we speak with AE caregivers. For full videos CLICK HERE
AE CAREGIVER SERIES
PARTICIPATE IN A SURVEY
You can get involved by helping us understand our community
by filling out oursimple survey about your AE
HESA IN-PERSON MEET UPS
An in-person face to face
meeting with other autoimmune encephalitis patients, caregivers, family members and friends.
CONFERENCES & SYMPOSIUM
WEDA World Encephalitis Day Conference 2024 Mayo Clinic, Jacksonville, Fl
NOTEABLE ARTICLES, BOOKS & RESEARCH
Understanding Hashimoto's Encephalopathy:
An Expanded and Updated Guide for
Patients and Caregivers. 2016 Edition.
HESA
The Acute Neurology Survival Guide
With section on Autoimmune Encephalitis
Catherine S.W. Albin, Sahar F. Zafar
Autism or Encephalitis?
"My Son’s Misdiagnosis &
Our Family’s Season in Hell"
S. Stiles, Quillette, 1/21/22