Aliscia's Story

Updated: Feb 5, 2020

During winter 2013, I started working as a preschool teacher. I loved my job! The kids brought me so much joy! Sadly a couple months after I started working, I started having muscle pain and weakness, especially my extremities. My legs couldn't hold me up at times, causing me multiple falls a day. I was no longer able to do my job. I thought a couple weeks of rest is all I needed. Instead of better, I got WORSE! I had a lot of memory problems, and my cognitive abilities were effected immensely! I frequently repeated myself, and would mix up words. Numbers, money, times and dates no longer made sense. My muscles seemed to forget how to work. I started using a cane and wheelchair. Some days I wasn't able to lift spoon to my mouth. I started hallucinating smells (always bad smells, why not cupcake scent!?) and having conversations with people that weren't there and experiencing varying altered levels of consciousnesses.

I was diagnosed with Hashimoto's encephalopathy, thyroid disease, and thyroid cancer. It seemed like I'd lost everything over night! I wasn't able to take steroids because of an allergy so i was started on IVIg. It took several months before seeing an improvement.

I'm thankful that during this time I found encouragement and friendships from HESA. It's always nice to knew that I'm not alone. 7 years later I still receive IVIg and feel it saved my life. My cognitive abilities have greatly improved and with the help of my mobility aids I'm able to enjoy my life. I share my story with a dose of humor, the disability hacks I've learned, and my personal mission to make mobility aids cool on Instagram at

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This website is not a substitute for professional advice, and the content here is not intended for use in diagnosing, curing, or preventing disease. The site does not employ and is not overseen by medical professionals. Articles and studies listed here are intended solely for personal use and reference.  Although you will find a great deal of information about HE/SREAT on this website, HESA cannot provide medical advice. If you have HE/SREAT, or think you may have it, consult a qualified neurologist,

preferably one with experience addressing immune-mediated illness. 

© 2019 Hashimoto's Encephalopathy SREAT Alliance,  an Illinois not-for-profit corporation